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 Calypso The Whale Rider- Her Story 
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Joined: Thu Mar 27, 2008 12:16 am
Posts: 69
Post Calypso The Whale Rider- Her Story
This is copy and pasted for ease's sake

At 9 weeks I was gushing blood and they swore up and down I was loosing the baby..... I didn't. We breezed through the next few weeks easily until 18 weeks. I had been spotting. Went in for an u/s. Calypso's amniotic fluid was at 1.5 (4.5 is critical) the u/s lady kept asking me if I had been leaking. I told her no, no I hadn't. They scheduled me for a recheck in 2 weeks saying she probably just needed to pee.

At 20 weeks I saw them again. The u/s tech was very quiet and told me that the baby still had no fluid and that my placenta looked 'funny'. She went to get my dr. He came in crying and told me I was at very very high risk for intrauterine fetal demise and having a stillborn baby. They referred me to a high risk dr who I saw the following Monday.

I saw the High Risk Dr at 21 weeks 2 days. He told me the baby looked ok and we were in a wait and see stage and I'd have every 2 week u/s. I never made it to my next appointment. On May 2nd at 23 weeks 5 days I woke up in a pool of blood. I called 911 and they took me away to our local hospital. They found Calypso's heartbeat and transferred my up to IU Hospital in Indianapolis.

There they diagnosed me as a placental abruption case. We had to sign papers telling them that if Calypso was born super early we wanted aggressive treatments to save her.

I spent 6 weeks in the hospital bleeding heavily off and on. When I hit 29 weeks I was so excited, if I had my baby she would live! I was so freaking happy.

On June 14th at 1:30 am I was 6 cm and they gave me an epidural. At 3 am I called my friend. At 3:15 I was feeling weird and the drs came in to check me. I told her I'd call her back. Calypso was born 5 minutes later in one push. She came out sunny side up and had her eyes open (I wish so badly I had seen her eyes, I never got to see them) she even tried to cry. She was 3 lbs 1.9 oz and 13 inches long.

I got up about an hour later to go pee and started hemorrhaging. The dr started my iv with pitocin (I got 2 bags) and they put cyotec up my bum and he MANUALLY yanked clots out of my uterus while shoving on my stomach. Finally they got everything under control

At 5:30 am they had Calypso stable enough to transfer her to Riley and I got to meet her briefly before they whisked her away.

Calypso was doing good, she had some small problems but was doing great. Then it happened, the unthinkable and most dreaded word that any preemie parent will ever hear NEC (Necrotizing Enterocolitis) it's a severe intestinal infection in preemies. It causes all kinds of problems, including renal failure. I was still so freaking hopeful! Everyone kept promising me she'd come home. Here's 2 of my journal entries leading up to her death

Quote:
WEDNESDAY, JULY 04, 2007 02:12 AM, CDT

A letter to God I wrote today

Dear God,

I know everything you do is for a purpose. And I KNOW it in my head but I can't for the life of me understand in my heart WHY my baby girl has to go through this stuff. She's so small but has already had stuff done to her that most adults haven't had done to them.

I realize that I may not be able to see her grow to adult hood but I beg you with EVERYTHING in me to let her come home. Even if it's just for a while. I want her to come home and be with her sisters and with me.

I want to hold her and rock her and actually be able to kiss her head. I want to sing to her and know she hears me. I want to see her eyes. I haven't even been able to do that. I want to be able to put her in clothes that WE bought her. And take her on a car ride and a walk through the park.

I want her to go to MOPS with me and the girls and smile at me. I want her to sleep in her own crib and use the diapers we have for her.

Please Lord I don't care if she's on oxygen or a vent or has been trached. I don't care if she's on a feeding tube or what. I just want her home. I want to hold her in my arms and tell her how much I love her. Please God you've done things so much more complicated then this surely it's not an unreasonable request?

In Jesus Name
Amen



And the day before she died

Quote:
FRIDAY, JULY 06, 2007 06:11 PM, CDT

Whoever says compassion and is dead and humanity is selfish needs to step back and re-evaluate their lives. The amount of support we've have for our baby girl is so staggering it brings tears to my eyes.

The fact that these people online who've never met me or my daughter are supporting her and praying for her without ceasing. My family members and friends who've never met her. It makes my heart swell with gratitude and love to know so many people are so involved with my angels life story.

We sat down and met with a team of drs today. They told us her kidneys still aren't working BUT that her NEC is almost GONE!!!! They injected die into her stomach and watched it move through her body!!! Now we are simply waiting to see if her Kidney's kick in. Dr Engles said that he's seen babies in Kidney Failure up to 4 weeks and then BOOM one day they start peeing and don't stop again. He also said the fact that she had a few days of pee and then nothing also could mean that they are Starting to function because sometimes they do that start and stop.

Baby girl is still in Critical Condition of course but there is hope. He said if she starts acting like things are getting to hard on her they can try a medicine or try dialysis. This could be risky since her stomach and intestines ARE still healing BUT if she starts going down hill we'll do anything possible to help her.

Right now they are monitoring her fluid, electrolytes, and all that stuff. As well as her blood pressure and blood gasses. All those at the moment are stable.

Over all we're playing the waiting game. Wait and see if she can do this or wait till God takes her home to be with him.

So Kind of the same news we already had with the one exception about the NEC being gone.

I know the news will spread quickly and wanted to remind you all of this. Humanity and Compassion are NEVER NEVER gone. Sometimes there is just so much junk to wade through that the compassion and caring gets over looked. Please take a moment out of your day to smile at someone and give them a bit of hope in the world. And Thank you All for giving us and our earthly angel this hope that the world hasn't gone to hell in a hand basket


The morning of the 7th the Nicu called me at noon and told me she was hurting bad and fighting the vents and her bp and oxygen levels weren't doing well. and we needed to get up there asap. I started bawling. I knew what was happening. The day before we'd gone to see Calypso and then I'd had a drs appointment and then Raeden did too and I was tired and DH went up to say Goodbye to Calypso and I didn't. On the way home I freaked out and told him if something happened I would hate myself for not telling her goodbye. Oh God I never told her goodbye and the next day she died.

We were 10 minutes out of Indianapolis nearing Riley when the NICU dr called again, you could tell from his voice things were bad. He said to get the whole family up there. I practically ran to the NICU and there was THE sign, that horrible horrible sign 'The NICU is Temporarily Closed' For any NICU mom they KNEW what this meant. A baby was passing or had passed away. I went in to see my princess as we waited for DH to get up there. I sang to her OUR lullaby. JUST ours Hine, E Hine.

Dh got there and we talked to the drs. They told us her oxygen sats had been below 60 for too long. There was too much fluid on her lungs and while they could TRY another procedure there was almost no chance of it working. So we made the decision and we took her off the vent.

Here's my journal entry from that day

Quote:
SATURDAY, JULY 07, 2007 06:18 PM, CDT

Calypso Paikea Rhyder got her angel wings today 7/7/07.
People say 777 is heaven's number and today I truly believe that.

As we were on our way to the NICU this morning about 10 minutes outside of Indy the dr called and told us that her oxygen sats had been under 60 for 4 hours and we needed to hurry because we were loosing her.

When we got there I called my parents and we went in to see her and talked to the doctors. I could tell just by looking at her it was obvious she was already almost gone. The drs said they could try another procedure that had little chance of working or take her off the vent. We chose to let her go. The hardest thing we've ever done in our life.

But doing the right thing is not always easy. As I held my angel today they baptized her and my girls got to come in and to see her. And my mom and my mil held her. Then we went to the other room and they were taking her off the vent and were going to bring her to us.

Oh Lord she fought! Even without the ventilator in my arms I could hear her gurgling and trying to breathe and I wanted to DIE. I was killing my baby and letting her die. My angel went to heaven in a room surrounded by my family and dh's family. We don't have an exact time of death because she died in our arms.

They dressed her in an outfit and wrapped her in a blanket and brought her back to us again to love on her. Before we left they gave us the clothes and the blanket she had been wearing as well as a lot of mementos. They did foot prints and hand prints and casts of her hands and feet which they will mail to us. We got a baptism certificate as well as a large teddy bear with a card that reads

'I know that this little teddy bear could never heal your broken heart or replace your child but, I will give you something to hold on to.
These teddy bears were given in memory of children that were called back to Heaven far too soon.
This teddy bear was given in memory of Scottie Michael Mullenix with love from his family'

And it has a picture of an angel on it. We also got every blanket and hat and anything that Calypso had used in the NICU.

My soul is half missing and it will never be whole until the day I am reunited with my princess.


My precious baby love. My last child spent 23 short days on this Earth but they will forever be the most memorable days in my life.

***************************

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Thu Mar 27, 2008 1:08 am
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:tear: Oh Melissa, first of all I would like to say :bighug: to you and your family.
Welcome to the club that no one wants to join, but the ladies on here are fantastic, and have been a huge support to me on my journey of grief.
I am Carley, married to Phill, SAHM to Bayden, 5, and our angel girl Julia Rose-Joy, born sleeping 3/11/06.
Calypso sounds like she was a real fighter. Your story is truly heartbreaking and once I stop the flow of tears I will come back and talk to you properly. Until then ((huge hugs)) from this side of the world.

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Thu Mar 27, 2008 8:45 am
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Joined: Thu Mar 27, 2008 12:16 am
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Ty so much sweetheart. I will admit I copy and pasted her story because I cannot write it or read it without having a mega breakdown. Perhaps I should put a tissue warning on it?

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Thu Mar 27, 2008 9:28 am
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Hi Melissa,
Like Carley said, welcome to the club that no one wants to join.
I just wanted you to know I've read your posts and want to reply properly, it means waiting for my little ratbag to go to bed, she doesn't let me type for long before she's demanding my attention.....grr...like now....
I will bbl to reply...

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Thu Mar 27, 2008 9:45 am
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Even after reading Calypsos website I can not make it through reading what you have written above, Tissues would not be enough for the tears pouring down my face and if there is spelling mistakes that is because I can not see and am going by memory of where I am sure the keys are.(Does not help that I have her Lullaby playing in the back ground...
Right now I just want to give you a hug.

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Fri Mar 28, 2008 1:28 pm
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Hey Melissa

:blue: :blue: :blue:

It sounds like Calypso had a real fight on her hands, and that she was a really brave little girl. Your story is so sad and my heart really goes out to you and your family. I just don't understand why these little ones are dealt such a cruel start, fight hugely to stay here, and then don't get the chance :blue: It is soooo unfair :!:

I really cannot add to that at the moment, because it just rips me apart :cry:

Take care and Hugs to you and your family

Yvonne

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Fri Mar 28, 2008 2:33 pm
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Hi Melissa.
I just read your story and it broke my heart :bighug:

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Fri Mar 28, 2008 9:11 pm
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Hi Melissa,,,,
I can't find the words to say! That broke my heart to read.
Love and hugs hun

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Fri Mar 28, 2008 9:40 pm
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